European musculoskeletal surveillance and information network - Eumusc.net (WP8)
Work package Leader: Royal Cornwall Hospital Trust, United Kingdom
Duration: M0 - M36 (36 months)
D 6 EUMUSC.NET project website. The website is linked to all the other project WPs. The project website will be part of the EULAR website and links will be placed on all websites of Associated and Collaborating Partners and all members of the network. The website will be promoted in relevant newsletters, publications, meetings, and mailings. Target users: health practitioners, NGOs and policy makers. They will be different for public or restricted areas of the website.
D 21 A sustainable European Musculoskeletal Conditions Surveillance and Information Network. The network is linked to all the project WPs. The network will be promoted through EULAR and its 80 professional and user member organisations, all the collaborating and associated partners' websites, newsletters, mailing lists. Target users: health practitioners, NGOs and policy makers.
Tasks and methods
1. Establish EUMUSC.NET network
The WP Lead / Main Partner, with the support of all the associated partners, will develop a comprehensive and sustainable network of collaborating professionals centres across all Member States that can support all WPs of the project through provision of data, providing professional opinion and facilitating long term dissemination and implementation of the project.
Members of the network will continue to provide data about the delivery of care using standardised reporting systems based on the assessment tool beyond the end of the project.
The network will include all associated and collaborating partners, and also, through EULAR and with progress of the project, include relevant patient and health professional organisations in all countries as well as centres of expertise.
It will be developed by the Main Partner but transfer during the project to be within EULAR to ensure sustainability. Protocols will be developed for the operation of the network.
The management and secretariat of the network will be under the lead partner during the life span of the project, but, at the end, it will be handed over to EULAR.
2. Establish EUMUSC.NET website
A website will be created to support the project and future activities of the network linked to the EULAR website, which already has over 400.000 hits per annum. It will be set up by professionals as part of the EULAR website, initially closed but in the long-term will be an open site. Content will be controlled by the Steering Committee.
3. Disseminate project results through EUMUSC.NET
The results of the project will be disseminated via the network. Access to web-based tools for auditing achievement of SOC and HCQI will be provided.
The network will meet at EULAR annual congress where 14.000 experts take part. Three congresses will be organised during the implementation of the project. This will help to keep the project costs lower, to find synergies with on-going EU activities and to guarantee a wide dissemination of project outputs.
4. Ensure sustainability of EUMUSC.NET
The sustainability of the entire project is guaranteed by the strength of the network developed during the implementation of EUMUSC.NET and in the longer term by embedding it within EULAR.
Responsibilities of Work Package Leader
Truro, UK is responsible for the delivery of all the tasks in this Work Package and of the deliverables linked to this Work Package, according to the agreed schedule and within the agreed budget. In detail:
1. The WP Lead / Main Partner, with the support of the associated partners, will develop a comprehensive and sustainable network of collaborating expert centres across all MS that can support all WP of the project through data collection, providing professional opinion and facilitating long term dissemination and implementation of the project. This will include project partners and also, through EULAR, include relevant patient and health professional organisations in all countries.
2. The WP Lead / Main Partner, with the support of a subcontractor and EULAR, will create a website (linked to the EULAR website) to support the project and future activities of the network.
3. The WP Lead / Main Partner will be disseminate the results of the project (reports, data on burden, standards for care; and recommendations for their implementation including examples of good practice and identified barriers and facilitators) via the Network.
4. Access to web-based tools for auditing achievement of targets for patient outcomes and quality indicators to monitor appropriate health care will be provided.
5. The WP Lead / Main Partner will organise three meetings to be held at the EULAR annual congresses during the implementation of the project.